Friday, August 22, 2008

Pink is a good color for me.

Its been almost one week, and then it happened again. I couldn't breathe, my stats dropped, and mom revived me. She said I turned blue. I heard her talking to me, but it was hard to breathe, even with the oxygen tube. I tried my hardest to breathe, and with the help of mom and dad... I felt a little better breathing and then it wasn't soo hard. I turned pink again. Pink is good. Good for me.
My parents had to make the call to 911 and now I am in the hospital again. I am trying my best to be good for them, and sometimes its soo hard to breathe (with oxygen). They just Love me soo much. I Love them soo much.
I hope to go home tomorrow to be with them, and hope to go to the real "seashore" house with my family this week, because I heard the air is easier to breathe at the shore. Hope is what I have.

Monday, August 18, 2008

Home in time to Party!

On Saturday when I came home it was my big brother's 2nd Birthday! I got to celebrate it with the family!! I am all set up at home in my crib, and lots of people can hold me. I am still attached to many wires and tubes, but there's nothing like being in the same room and hearing my family sing Happy Birthday (Cha Cha Cha) in the dining room! The next birthday party is Stephen's in December, and then after his, it will be my 1st Birthday Party! I want to have mine at home too!

Thursday, August 14, 2008

Home away from Home: The Seashore House at CHOP

It was a rough evening for me yesterday being my first day home from the hospital. I had a great day at home with Mom and Dad. A nurse came to take care of me and mom went to work. As the evening went on, I found it difficult to breathe. The nurse saw me having difficulties and called 911. The EMTs tried to suction a mucus plug out of me, and then they took me down to CHOP ED. It was a good call, said the Docs.
I am back to see my old friends on 4 WEST, and breathing well. I am looking to go home for the weekend, and stay home for longer than last time. Your prayers are working for me... but can you send some Martinis to my parents at home?! ;) Dad likes Sierra Nevadas too.

Wednesday, August 13, 2008

In Aunt Joy's Arms

Gianna from Joy Macdonald on Vimeo.

I am back home!

I am back home now! Home with my family! I am 7months old and I am happy to be back home with the gang again! I thank all my nurses and docs at CHOP. I will miss Terrell.
I have lots of windows here at home to look at!

Sunday, August 3, 2008

Trying to catch a break

I have been at CHOP since June 22, 2008. Its been about 7 weeks. I have been in the Seashore house for the past 3 weeks. My Mom visits me everyday...its the one thing I look forward to everyday.

I have a Rhino Virus (head cold/fever). I have a fever, and more mucous secretions. The fever increases my seizures and so they are non-stop. I am extremely uncomfortable and very irritable. I realy like it when my Mommy holds me in her arms, because thats the only thing that makes me feel comfortable. I thought the nurse at the hospital was going to move me closer to the window, and she forgot to do it. I have a new roomate, and she has the window. I am hoping I get the window soon.

I had a recent visit with my Aunt Sue Anne and her friend Joy who used to work in the NICU at CHOP. She was very cautious with me when holding me and knew how to hold me just right so I take my pacifier. It was a really nice visit. Here are some pictures they took of me.

Please pray that my fever goes down, my brain heals and seizures go away, my mucous secretions thin out, I can breathe on my own without oxygen tubes, my G-tube area's infection heals, and that the pneumonia brewing in my left lobe, disappears. Please pray for a miracle to heal me of all my ailments. And Please ask your little ones to pray for me too, the Lord listens to your children's prayers with special ears. I will fight this out, knowing you are praying for me.