My brothers and I got my mom an iPod for Mother's day. We know she loves to listen to music and sing along to old songs. It was a nice day. Dad made breakfast, fed all of us, including me, and we also went to church. We then went over to my Aunt's house for dinner. All my Aunts, Uncles, and Cousins on my mother's side were there! I was held by Grandmom Anne, and my Aunts all evening. My brothers and cousins played at the park across the street and in my Aunt's exercise room. She has a bar, and a trampoline there.. here are some pictures of my brothers and cousins! We were rooting for the Flyers too! I need a pink Flyers outfit to go along with my brothers' outfits! I can't wait to get kisses from my Grandma Kay! She was visiting My Godmother, Mary.
Friday, May 2, 2008
I was at CHOP for 16 days. I am home now with my brothers and parents. I am back to wearing my pink clothes, hanging in my swing, held by mom & dad ... grandmoms too, and hanging out on the porch on a beautiful spring day.
Today I was at the Neurologist, Dr Licht's office. I really like him, he is soo nice to my mom and dad. And he is always checking in on me. He told mom that I am not supposed to have seizures that last more than 15 mins, and that I should go to the ER if that happens again. ...I really hope that doesn't happen, because I don't want to go back to ANY hospital after these past weeks. I just want to be home and be in the comforts of home. A nurse comes to the house now and helps me with my new feeding tube. I have to follow up with the different doctors: pediatrician, general surgery, GI, pulmonary, opthamology, and orthopedics in the next couple of weeks. Mom needs to coordinate these appointments, and she is looking for help from CHOP to help her do this. Mom is also going back to work in a few days.
I am soo happy to see my brothers again. They keep me company all the time at home.