In and Out

This is me and my cousin. She is so sweet to me, and waited a long time to get a chance to hold me on this day.
This is my brother and my grandmother on Easter night. I was toasty warm in Grandma's arms.

The latest news is that I went to CHOP for the week, last week. I took some antibiotics thru an IV and it helped me get better so I can get home. One week... and now I am back home :)

Gi dolly, Gi bunny. Gi lovey.

A couple of months have flown by since I turned 2. And lets just say, things haven't been quiet with three big brothers running around the house, activities array, my homecare nurses on their shifts, my machines making all sorts of noises for my respiratory treatments, the usuall bells and whistles of my monitor, and of course the parties that are held at the house to celebrate the holidays!

Everyone who comes to visits, say I look like a precious doll. Looking forward to my next visit with you!!

I have grown a bit, and weigh a little more too. But still love to hold my pink bunny!

This is me with my Aunt on Easter Sunday.

Tea for Two, Tea for me and you, Gianna turns 2!

On January 10, I turned 2 years old! My mom and dad had a tea party for me! They invited my grandmothers, aunts, uncles, and cousins! And Willie, my nurse was there too, to take care of me, and also to enjoy the party! We had lots of food! My mom and aunts made tea sandwiches, and my dad made sure potatoe chips, pickles, and beer were there to accompany them. Silly Dad, dont you know that tea parties are all about saving room for the sweets and scones with our tea?? He's the best, he always makes sure that everyone has plenty to eat when there is a party at our house!
My mom made soo many mini cupcakes! chocolate and vanilla. Sprinkles and jimmies. white and chocolate icing. They all looked so yummy. My Aunt Maureen made the yummiest cookies and brought so many flavors of tea. My grandmom Kay made scones with cranberries and white-chocolate chips. Grandmom Anne made her Irish Scone. And so many people brought lots of cookies, candy and chocolates! Yummm! The hot tea was delicious on a very cold January day.
We all had a great time, and everyone had lots to eat! We were all so happy that I was healthy enough to be home for my birthday! A true blessing for all!

Many Blessings ahead for 2010

I hope you all had a great Holiday season and you are ready to bring in the new decade of 2010. Its going to be a good year, and lots to celebrate, including my 2nd Birthday in a few weeks!!

Thank you for all your prayers and good thoughts in 2009. I spent Christmas and New Years in my home. The care I receive at home has become such a blessing to me and my family.

Wishing you Love, Faith, Happiness, and many Blessings for 2010!


This is me with my Aunt Kate on Christmas Eve:

Can you Pray... for a miracle?

Blessed Marianne Cope is need of one more miraculous event to occur in a prayer to her, so she can become Saint Marianne Cope. I am in need of a miracle of being cured of Aicardi Syndrome and all the physical ailments that accompany it.
Blessed Marianne Cope took care of many girls and women who became very ill and deformed. She help establish homes for girls and hospitals for the sick in Hawaii.
My family is very faithful and our religion is Roman Catholic, we welcome you and all people of faith to join us in saying this prayer to Blessed Marianne Cope:

Lord Jesus, You gave us Your commandment of love of God and of neighbor, and identified Yourself in a special way with the most needy of Your people; hear our prayer. Faithful to Your teaching, Mother Marianne Cope loved and served her neighbor, especially the most desolate outcast, giving herself generously and heroically for the victims of leprosy. She alleviated their physical and spiritual sufferings, thus helping them to accept their afflictions with resignation, as a pledge of God’s love and their eternal happiness. Through her merits and intercession, grant us the favor which we confidently ask of You to cure Gianna Mashett of Aicardi Syndrome and all the ailments that accompany Gianna's illness so that Gianna becomes a healthy girl as she grows so that the People of God, following the inspiration of Mother Marianne Cope's life and apostolate, may practice fraternal charity, according to Your word and example. Amen

Our Father, Hail Mary, Glory Be (with ecclesiastical approval)

Please say this little prayer every day. Some Intercession prayers are said everyday for 9 straight days.

h1n1 epidemic

I caught the flu, I was home for about 3 full days until I went back to CHOP. I am fighting this flu with the help of the best care at CHOP. Cheers to my team, I know they will help me get better again soon, and soon I will be home!

Fall Back

The boys went to back to school, and I soon went back to CHOP.

There has been a change in my status. I am not able to "sprint" as often as I was able to do so. Sprint means that I could take a break from the BiPAP machine. The break would allow me to use the nasal cannula tubes for oxygen. The BiPAP machine...air delivered through a mask is set at a measured pressure for inhaling and another for exhaling. BiPAP allows me to get more air in and out of the lungs because I sometimes lack the natural muscular effort needing to do so.

So now I am at CHOP, and I am reliant on the BiPAP machine at all times. They tried to sprint me again, but I cant respond like I did in the past.

So in addition to many people praying for me, I have many doctors working to help me so that I can breathe on my own again. Including my big brothers. Stephen has taken on the role of Dr Licht, my neurologist as he was trying to fix my brain...and Brendan was trying to tap into my lungs to help me breathe like Dr Goldfarb, my pulmonologist.

They know I still need more "fixin' ". So my brothers are going to come back to visit me almost everyday to help fix me. My family is praying for me everyday to help heal me.